Se: EXPERIENCE The experience
Si: RELIVE The experience
Ne: CONCEIVE FROM The experience
Ni: ANTICIPATE The experience
Te: ORGANIZE The experience
Ti: ANALYZE The experience
Fe: RELATE TO The experience
Fi: EVALUATE The experience
what you said was very sweet and means a lot to me but i am incapable of properly responding in any way besides “thank you so much aaaah” because i do not know how to accurately express the exact level of my gratitude to where you completely understand how much what you said meant to me without me getting even more emotional and looking like a fucking nerd: an autobiography
my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
Think about this next time you think it’s just a stupid gimick
*goes to bed at 11pm and doesnt fall asleep til 4am*
i love listening to a song repeatedly until i hate it
Do you ever have that one line in a song that just means the world to you and has this deeper meaning that you feel just explains everything and then your friends listen to it and are just like that’s cool but you’re like NO THAT LINE IS JUST EVERYTHING HOW DO YOU NOT UNDERSTAND and you realize just how much music means to you
Shake it off
i guess i recorded an ice bucket challenge today after i got my wisdom teeth out ??
OH MY GOD. Best ice bucket challenge video ever.
….I have no words.
the 1700s called……they want their clothing back. haha just kidding the first telephone was invented in 1876
a good post AND i learned something. thanks tumbrl
lil grown men
501. Muggleborns accidentally calling Dumbledore “Gandalf”.
When you realize you’re watching tv alone then make a vine about it… Then watch that vine and realize you’re watching it alone.
Chester is one of my favorite humans
I like making dresses. And by making dresses I mean drawing them and then fantasizing about them and shopping for patterns for them and making a muslin and then getting the fit perfect and then losing interest.
Fabric from this Sargent painting, which is public domain and I really really really want to make a print of it but I need a much higher resolution photo. Anyone know if this is in an art book somewhere?